A View of the Type 1 Cure Landscape
December 19, 2013
This report takes a fresh look at the type 1 research landscape through donor eyes. As we survey the type 1 research and philanthropic landscape, several key distinctions of research types that are relevant to donors are identified. This analysis lays the foundation for JDCA coverage expansion during 2014. Click here to read more.
The U.S. Economic impact of type 1 diabetes
December 3, 2013
We all know the cost of living with type 1 diabetes- the worry of going low overnight, the financial strain of testing and management, and countless other burdens. This report takes a look at the direct and indirect economic costs of type 1 diabetes in the US. Academic research estimates that the cost of not having a Practical Cure for type 1 diabetes is $423 billion. Click here to read more.
Type 1 diabetes: A Growing Concern
November 21, 2013
While there is no consensus as to the cause, it is undeniable that type 1 diabetes is striking more and more children across economic, racial, and geographic boundaries. If the growing number of children with type 1 were not enough of a reason to inject urgency into the pursuit of a type 1 cure, the financial costs associated with the growing population might also prompt a more concentrated cure effort. Click here to read more.
The 4 s's of good giving: High impact donations
November 5, 2013
State of the Cure 2013 analyzed the progress toward a Practical Cure over the past year and concluded that little tangible progress was made. You may be asking yourself, so what can I do to change that in 2014? Be an informed giver and ensure that your donation is used toward Practical Cure research. This walks you through the 4 steps of high impact giving to maximize your generosity and accelerate progress. Click here to read more.
State of the Cure 2013
OCTOBER 15, 2014
his report takes a comprehensive look at the progress that was made toward a Practical Cure for type 1 diabetes in the last 12 months. The report finds that while only a limited amount of progress has been made, there are a few encouraging developments. State of the Cure covers a range of topics including the societal impact of type 1, developments in human and preclinical trials, non-profit research funding and allocations, and corporate governance. It concludes with actions that we can take together to stimulate greater progress in 2014. Click here to read more.
90% of charities FUND-RAISE using cure advertisements, Only 18% of donations go to research
September 23, 2013
Although 'Finding a Cure' was the key message in 90% of diabetes nonprofit fundraisers in 2013, only 18% of funds raised at these special events was actually allocated to cure research. The JDCA's latest report is the third annual look into fundraising messaging and alignment with donor wishes. Click here to read more.
Executive Compensation at the Major Diabetes Non-Profits a Missed Opportunity
September 9, 2013
How are the executives at the major non-profits paid, and how does that pay structure help or hinder cure progress? Click here to find out.
Corporate Governance Star Report
August 29, 2013
Can the non-profits benefit from the best practices of public companies' corporate governance? The JDCA believes that applying SEC standards to the diabetes nonprofits will not only improve organizational performance but also increase donor contributions. This report evaluates the non-profits' corporate governance practices using the STAR rating criteria: Strategic direction, Timeliness and Transparency of reporting, Accountability, and Resource utilization. Click here to read more.
Foundational Data Report: The Size of the Population Impacted by Type 1 Diabetes
August 5, 2013
How many people in the US are living with type 1 diabetes? Surprisingly, there is no consensus within the type 1 diabetes research and charity community. This and other related topics are investigated in this report. Click here to read more.
Non-Profit Revenue and spending review for the fiscal year 2012
June 28, 2013
In 2012, the four major diabetes non-profits raised over $520 million in revenues. The JDCA's latest report Non-Profit Revenue and Spending Review for Fiscal Year 2012 reviews the breakdown of key revenue and expense categories. It also highlights trends in comparison to last year's breakdown. Click here to read more.
Will JDRF's new t1d voices council influence cure development?
June 14, 2013
The JDCA has been receiving inquiries from Alliance members regarding the significance of JDRF's new T1D Voices Council and its role in comparison to the disbanded Lay Review Committee. In response, this report will describe the Council, its purpose, and the important role it could play in shaping JDRF's cure development efforts. Click here to read more.
What do donors expect from the major type 1 non-profits?
June 4, 2013
Here at the JDCA we value donor expectations and believe that their intentions and priorities should be reflected in funding allocations. Donor expectations related to cure research involve three main areas: prioritization of cure work; speed to results; and transparency of communication. The non-profits meet some key donor expectations, but significant gaps exist between what donors expect from the organizations in their cure development efforts and what the non-profits deliver. Click here to read more.
How much practical cure research do the major type 1 non-profits fund?
may 20, 2013
How much Practical Cure research is funded by the major type 1 diabetes non-profits? It varied considerably by organization in 2012, but in the aggregate only 2 cents of every donor dollar was applied to Practical Cure research. Click here to read more.
The Diabetes research institute's biohub initiative
March 29, 2013
In response to many inquiries and engaged discussion among our Alliance members, please find the JDCA's special report, "The Diabetes Research Institute's Bio Hub Initiative." Click here to read more.
What are the characteristics of a practical cure project?
March 24, 2013
This report describes the characteristics of Practical Cure research and distinguishes it from other types of cure research.
The criteria that determines whether research is Practical Cure research can be objectively applied to all cure research projects funded by the non-profits. Click here to read more.
what must change to achieve a practical cure by 2025?
March 4, 2013
This report outlines what must happen in order to deliver a Praccal Cure for type 1 diabetes by 2025. First and foremost,
meeting this goal requires a paradigm shift. in how the major non-profits pursue cure development and fund research. The extensive recommendations presented in this report involve all of the major players: the non-profits, the research community, and donors. Click here to read more.
Do donors feel that practical cure research is valuable?
January 31, 2013
This report takes a look at the cure research perspectives of the type 1 donor community. We conducted a third-party survey and one of our key findings is that 9 out of 10 people prefer Practical Cure research over Idealized Cure research. We also learned that a high percentage of donors would be likely to contribute to Practical Cure research projects if that option was made easily available to them. Click here to read more.
How do the diabetes non-profits measure cure progress?
January 17, 2013
Like you, we want tangible cure progress to be made so that we can see a Practical Cure in our lifetime and be freed from the daily burdens and worries of type 1 diabetes. This report explains how cure progress is measured at the non-profits, and why these abstract and sometimes irrelevant measures hinder cure development. Click here to read more.